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CHAPTER EIGHT UPDATE: FEB. 25, 2004 Dear All,
I'm sorry this update is a bit later than the others, it has been a very
busy week and weekend. Ivy has had another very calm and uneventful week,
which is a blessing for us all. Her original pulmonary doctor has returned
to her case and, thankfully, is taking a slower approach to her care. He
is no longer making multiple changes to her ventilator's settings and is
allowing Ivy ample time to adjust to changes.
Ivy's ventilator is now set for 85% oxygen instead of 100% and her oxygen
saturation remains at 100% which must be an indication that there is some
improvement to her lungs. She has been very tolerant of being
turned now as she remains at 100% sats now after being turned (or a slight,
momentary drop). This used to cause her to drop several numbers and
take up to 1/2 hour to recover from.
Ivy is no longer being given the paralytics and is allowed to "wake up" as
she will. When she is awake, she communicates with her nurses and us
(nods of the head...she can't talk because of the trach). She doesn't
seem to get agitated as often as she used to, which is very good. Ivy
maintains her stats very well.
This morning we have a "family" conference with her doctors to go over
Ivy's care and what will be happening in the future. There was some talk
of possibly trying a "body glue" on Ivy's lungs (I don't know anything more than
that at this time...it WILL be a question for them). There is also some
talk of transferring her to either UCLA or Cedar Sinai Hospital if surgery is
required to repair her right lung. This is especially terrifying to us as
the surgeons at Palomar Hospital were afraid to transfer her from the sixth
floor to the fourth for surgery! Again, something to discuss in detail
this morning.
So, while there is no major progress to report, I'm very happy to let you
know that there are no new pnuemos, no bad days and most especially, no major
setbacks to report! A very special thanks to everyone who sent a card or
e-mail to Ivy. I will be sending e-mail thanks to you individually as soon
as I can, you really deserve it. I can't possibly express to you how much
it means to Kathie, Chris and I that you send her cards and e-mails, but I can
tell you that every one of them bring a smile to Ivy's face as I read them to
her and tears of gratitude to my eyes as I read them...
Thank you all so very much, for your prayers, well wishes, good vibes and
most especially your support and love for Ivy. God Bless you all.
With My Best Wishes Always
Michael
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